Thursday, January 29, 2009


Now, here's the count-down—

And, on the other hand, it's now been five weeks, or it will be this coming Saturday night, since my hip and pelvis got rejoined in the OR over at St Charles Hospital. So, next week I'll make an appointment to see the orthopedist who did the rebuild and see how it's going. I’m really tired of this.

Yeah, I have it easy compared to a lot of other people with Osteogenesis Imperfecta. I have it easier than a lot of other people, period. Our local paper ran a 3-parter on a woman I’ve spoken to, and see often, over at the pool; she has a disorder that they can’t even diagnose—but it’s taking her down as sure as termites wreck a house. She’s less than half my age, but she’s on daily dialysis because her kidneys are failing; she walks with a cane because she has severe osteoporosis and has only semi-controlled seizures. Her muscles are atrophying. When she was a teen-ager blood leaked in one of her eyes and she lost it. I don’t have anything like all that.

Easy, though, is a comparative term. My easy might be your hard, or your hard might be my easy. It’s like comparing stories of abuse. Who’s to say who had worse abuse? Or a happier childhood or...

So, anyhow, I’m tired of this being the way it is. I’ll be glad to get back to relatively unrestricted freedom; even using a cane will be an improvement.

I’ll try taking the camera with me to the dr’s appointment and see if I can get a shot of the x-ray. If I can, I’ll try to post it here. Just because.

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